UC Davis Health has premiered a new documentary on a family’s urgent journey across the globe to get their toddler in a clinical trial for patients with Duchenne Muscular Dystrophy, or DMD.
“John-John's Journey: Gene Replacement Therapy Offers New Hope for Duchenne Muscular Dystrophy” follows Dino Kong, Emily Kuo and their toddler son John. The family moves from Hsinchu, Taiwan, to Northern California, to enroll John in a UC Davis clinical trial for a promising therapy for DMD.
DMD is one of the most severe types of muscular dystrophy. The genetic disorder weakens all muscles in the body, including the heart and lungs. This can lead to heart and breathing problems, as well as early death. It affects mostly boys, who often show symptoms as early as age 2.
Read more on the UC Davis Health website.
—Pamela Wu
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Cody Kitaura is the editor of Dateline UC Davis and can be reached by email or at 530-752-1932.